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Entry 10: Things to Come

Posted by Sherri Viner on April 30, 2015 at 9:25 PM Comments comments (0)

We went to meet the surgeon today along with the neonatologist. The day started out great, Alexander was in good spirits, weather was cooperating with no rain in sight and loads of sunshine, and Jimmy was able to spend the morning with us before we had to go to our appointments. Once we got there, that was a bit of another story.


We checked into the cardiology department and I was anxious to meet the surgeon. As we were waiting, the toys in the waiting room were too allur...

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Entry 9: The Fork in the Road

Posted by Sherri Viner on April 21, 2015 at 4:05 PM Comments comments (0)

Since our ultrasound appointment last week with Dr. Schneider, Jimmy and I have gotten comfortable with the idea of delivering and having Nicholas’ heart surgeries at the Helen DeVos Children’s Hospital. Prior to our appointment, I was thinking that we would have to go to Mott’s Children’s Hospital in Ann Arbor which is 2 hours away. The logistics of how everything would work has been weighing heavily on my mind. We have other children and Jimmy’s work to cons...

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Entry 8: "D" Day (Diagnosis)

Posted by Sherri Viner on April 17, 2015 at 12:55 AM Comments comments (0)

Today was finally the day we’ve been waiting for since our visit in which they told us that Nicholas has heterotaxy. Our appointment was the first of the day at 8:00 am so we didn’t have much time to think about what was ahead since we were rushing out the door. The mornings tone was set by a dreary rainy sky but the drive was fine except for the bit of traffic going into downtown.


We checked in and just a few minutes later we were being ushered towards the ult...

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Entry 7: The Waiting Game

Posted by Sherri Viner on April 15, 2015 at 9:30 AM Comments comments (1)

It’s been a while since my last post. I still find it difficult to actual try to articulate what’s going on in my head. Since my last posts I’ve gotten into some closed heterotaxy communities on facebook. Everyone is very supportive but in the same breath, it also brings reality to the forefront. I see all these families and children going through these unimaginable things and it’s like we are given our very own mirror on the wall to show us our future. I can hardl...

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