Life as we know it - Viner family blog about our journey with Nicholas' heterotaxy/CHD and all the other things too!

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Entry 12: Tale of Two Cities

Posted by Sherri Viner on June 9, 2015 at 5:00 AM Comments comments (0)

I tend to be a planner. It’s not that I lack the ability to be spontaneous and go with the flow but I think it’s because I’ve had to adapt to variable situations so often that as a result, I try to cling onto things that I feel are within my control. So with a few months to go until I reach my due date I’m trying to prepare the best that I can but I have a feeling that no matter how well I think I understand the events to come, it’ll be one of those things in l...

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Entry 11: Is it Real?

Posted by Sherri Viner on May 13, 2015 at 7:20 AM Comments comments (0)

Another sleepless night and I find myself back at my laptop. I’m not sure if it’s the pregnancy that’s keeping me awake or all the things juggling around in my head. Since I’ve started this blog I’ve also thrown myself into social media which is still very challenging for me at times. I find myself on and checking it all the time since it’s still so new to me. I’m still trying to figure out all the proper vernacular and protocols. Since I’v...

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Entry 10: Things to Come

Posted by Sherri Viner on April 30, 2015 at 9:25 PM Comments comments (0)

We went to meet the surgeon today along with the neonatologist. The day started out great, Alexander was in good spirits, weather was cooperating with no rain in sight and loads of sunshine, and Jimmy was able to spend the morning with us before we had to go to our appointments. Once we got there, that was a bit of another story.

We checked into the cardiology department and I was anxious to meet the surgeon. As we were waiting, the toys in the waiting room were too allur...

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Entry 9: The Fork in the Road

Posted by Sherri Viner on April 21, 2015 at 4:05 PM Comments comments (0)

Since our ultrasound appointment last week with Dr. Schneider, Jimmy and I have gotten comfortable with the idea of delivering and having Nicholas’ heart surgeries at the Helen DeVos Children’s Hospital. Prior to our appointment, I was thinking that we would have to go to Mott’s Children’s Hospital in Ann Arbor which is 2 hours away. The logistics of how everything would work has been weighing heavily on my mind. We have other children and Jimmy’s work to cons...

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Entry 8: "D" Day (Diagnosis)

Posted by Sherri Viner on April 17, 2015 at 12:55 AM Comments comments (0)

Today was finally the day we’ve been waiting for since our visit in which they told us that Nicholas has heterotaxy. Our appointment was the first of the day at 8:00 am so we didn’t have much time to think about what was ahead since we were rushing out the door. The mornings tone was set by a dreary rainy sky but the drive was fine except for the bit of traffic going into downtown.

We checked in and just a few minutes later we were being ushered towards the ult...

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Entry 7: The Waiting Game

Posted by Sherri Viner on April 15, 2015 at 9:30 AM Comments comments (1)

It’s been a while since my last post. I still find it difficult to actual try to articulate what’s going on in my head. Since my last posts I’ve gotten into some closed heterotaxy communities on facebook. Everyone is very supportive but in the same breath, it also brings reality to the forefront. I see all these families and children going through these unimaginable things and it’s like we are given our very own mirror on the wall to show us our future. I can hardl...

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Entry 6: Faith

Posted by Sherri Viner on March 23, 2015 at 2:10 AM Comments comments (2)

After we found out the initial diagnosis and long term prognosis we slowly began to tell people. The question of terminating the pregnancy has not only been asked, but in many cases we felt like people just assumed we would. I wouldn't be honest if I said I hadn't at least thought about it. I thought about how much easier it would be on our family, after all we are raising two other boys. Not to mention that it may be more humane right? Why would anyone knowingly want to put their child th...

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Entry 5: Life Goes On

Posted by Sherri Viner on March 22, 2015 at 2:05 AM Comments comments (0)

The next morning came, as it always does, whether I wanted it to or not. I didn't have much time to think or sort out what I was feeling about the news we just received. I had work to finish, an overly active kiddo who wants all of my attention, and a house to clean before Jimmy’s parents got in town. The visit was planned before we got our news and I wish we didn't have to have this “thing” hanging over us. Regardless, it’s always nice to have family around and honest...

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Entry 4: The News, Part 2

Posted by Sherri Viner on March 21, 2015 at 2:00 AM Comments comments (0)

I picked Jimmy up from work and headed to our appointment. The car ride was calm even though we were both full of nerves. We got Alexander set up in his stroller and we went up to the doctor’s office and checked in. It was around lunch time and because we had so much time before we were going to be called, we headed downstairs to the food court area which was between the offices we were at and the Children’s hospital on the other side. Jimmy waited in line and got some food fr...

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Entry 3: The News, Part 1

Posted by Sherri Viner on March 20, 2015 at 1:55 AM Comments comments (0)

Another week goes by since the negative materniT21 test and I'm already back at the doctor’s office for the routine anatomy scan. I already knew that I'd have to come back for another one since I wasn't as far along as they thought I was. Regardless I was just excited that we were going to able to see him for the first time.

My name finally gets called from the waiting room and Jimmy pushes the ridiculously huge stroller through as I drag along my purse and Alexander'...

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