Our Journey with Nicholas & Heterotaxy, Part 1: BT Shunt Add Video

At our 17 week ultrasound, the doctor told us our baby boy Nicholas has Heterotaxy. Since then, we've been through the spectrum of emotions. One thing that we kept feeling is helplessness. Nothing we could do would change what happened to our sweet baby. We felt our family and friends felt the same in that they didn't know what to say or do. So instead, we are doing the only things we know we can. We are trying to be proactive and learn as much about the disorder, started and fundraising for our nonprofit, and passing along our story to help spread awareness.

Posted by Sherri Viner on December 19, 2015 at 12:55 AM 1279 Views

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