Current News Media:
Feb 11, 2016, By The Journal of Pediatrics: "Screening and Treatment of Intestinal Rotational Abnormalities in Heterotaxy"
Dec 6, 2015, By Las Vegas Sun: " Exploring heart disease in children"
Dec 6, 2015, By Medical Research.com: "Mutations In Congenital Heart Disease Also Linked to Neurodevelopmental Abnormalities"
Nov 3, 2015, By: Pediatric Research: "Low Immunoglobulin M Memory B Cell percentage in patients with Heterotaxy Syndrome Risk of Severe Infection"
Sept 19, 2015, By: Children's Hospital of Philadelphia- video presentation: "Heterotaxy"
July 16, 2015, By: WTOP Paula Wolfson: "Doctors scramble to keep up with congenital heart disease patients"
June 26, 2015, By: Medical Xpress: "Hospital prints first 3D heart using multiple imaging techniques"
June 8, 2015, By:Press Association: "Heart defect hope in new discovery"
June 26, 2015, By: Medical Xpress: "Hospital prints first 3D heart using multiple imaging techniques"
June 8, 2015, By:Press Association: "Heart defect hope in new discovery"
May 25, 2015, By: Enterprise Innovation: "First simulated human heart to advance research on heart disease treatment"
May 22, 2015, By: Star Tribune: "University of Minnesota researcher has one of the first 'bioprinters' using living tissue"
May 6, 2015, By KSAT 12: "Fetal Heart Surgery: HLHS"
May 6, 2015, By Scicasts: "Research Suggests Blood Markers Could Help Predict Outcome of Infant Heart Surgery"
May 2, 2018, By Lawyers & Settlements.com: "Zofran Birth Defects Lawsuits on the Rise"
Helpful Links & Resources
- Heterotaxy video presentation from CHOP "Heterotaxy"
- Current Clinical Study-Recruiting "Heterotaxy Syndrome and Intestinal Rotation Abnormalities - A Prospective Study"
- CHD & Related Terms
- Official Topic from UpToDate® "Anatomy, clinical manifestations and diagnosis of heterotaxy"
- Heterotaxy Overview "Heterotaxy Syndrome"
- Cincinnati Childrens Heart Institute "Heterotaxy, CFC1, FOXH1, NODAL, ZIC3 Spec Sheet"
- List of questions which was blogged by Alexandra Entry July 27, 2012: "The questions I wish I would've asked Ava's doctors."
- Heterotaxy Defined "Heterotaxy Syndrome"
- Malrotation, LADD "Malroation-Heterotaxy & CHD"
- Case Report "A Rare Variation of the Heterotaxy Syndrome"
- Research Article "Interstage mortality for functional single ventricle with heterotaxy syndrome"
- Fontan "Improving Results of the Fontan Procedure in Patients With Heterotaxy Syndrome"
- Cincinnati Children's Define Single Ventricle & Fontan "Single Ventricle Anomalies and Fontan Circulation"
- Disability Benefits "Disability Benefits and Congenital Heart Defects in Children"
The Heterotaxy Connection is great resource on Facebook for connecting with other individuals and families touched by heterotaxy. This group provides a forum to ask questions along with providing a place to share among others that truly understand. Follow the link and Connect with them today!